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Close And Very
Personal
This is very personal, but real
and possibly of value to you.
About
in mid-2003 Jean Ross, my wife, started having trouble swallowing.
The symptom was a sudden vomiting of food she had just tried to
swallow. The first time this happened it was sudden and very
disconcerting.
It didn't happen again, for some
weeks, but by the early part of 2004 it was becoming unpleasantly
frequent. Finally this was happening almost every meal. She lost
weight because of not being able to get the food down. She could
eat some things, strangely that included popcorn, and when she
started trying it, she could drink a protein drink, with a raw egg
mixed in.
We learned that an "endoscopic
examination" was the usual thing -- she learned of the details
and really didn't want to do that.
The first thing she was willing to
do was called an "upper GI." She swallowed "barium" and
had several X-Rays taken, in the area of the esophagus. They only
saw a "narrowing" of the opening of the esophagus, but specifically
missed the "mass" that was there. Later a doctor explained this
saying the barium had either already passed this part, or hadn't
gotten there when they did the X-Ray in that area. I don't think
they were very competent. But it is hard to be critical when you
don't know what is happening.
But,
when the swallowing got more difficult she decided it was the
necessary thing to do. I was remiss in not doing the research into
this problem until about then, but that is when I started
researching and publishing the several pages in this section --
starting with "endoscopy" and then concentrating on the "esophagus."
Without looking carefully at all
the facts we both thought this might be one of those well-publicized
"acid reflux" problems, and I initially concentrated my research on
that subject.
But, she soon realized that when
she vomited there was never any sour or bitter taste -- there was no
stomach acid or bile. The only thing that came up was what she had
just tried to swallow. Later a doctor told us that acid reflux
could exist without any of the stomach acids or bile getting high
enough up to taste it -- that the damage to the esophagus could be
caused by acid-reflux even so. The time of the endoscopy was fast
approaching -- scheduled for February 13, 2004.
By the day before the endoscopy I
had published most of the material you now find here -- I knew that
a "mass" could be the problem causing closure of the esophagus, and
thus preventing swallowing, but that seemed somehow remote, so I did
not particularly research into that possible problem initially.
The endoscopy was done, and the
immediate report was that there was a "mass" at the bottom of the
esophagus, and that the doctor dilated the opening at the end of the
esophagus -- he said that might give some immediate but temporary
relief for swallowing. It did not!
I knew that an endoscopy exam
would normally include a "biopsy" of any mass found during the
exam. We asked the doctor if he could agree to do the endoscopy
without doing any biopsy -- if we requested that. He said he could,
but seemed puzzled as to why we might want that. I mentioned the
dangers of metastasis if a biopsy is done of a mass that turns
out to be cancer. He didn't think that was any danger.
We
then went to another doctor -- one we have used for 20 years and
trust more than any other we knew. He said that the type of biopsy
done during an endoscopy was a "scraping" of the surface and that he
thought this was quite safe. He also suggested Jean start drinking
Aloe Vera Gel every day and I suggested Jean start using our
Germanium every day. Germanium is an
extremely powerful oxygen therapy.
She was afraid she couldn't swallow the
Taheebo Capsules, and didn't like the idea of pulling the
capsules apart and trying to drink some water with the contents of
the capsule in them. Later I arranged to get the concentrate part
of our capsules and package them into tiny tablets that could be
chewed, or held in the mouth, more like many homeopathic remedies.
The report on those is later on this page.
So, we accepted that the endoscopy
doctor would do his normal procedure.
Since he found a mass he did go
ahead and do his "biopsy." He told me, afterwards, that he did two
types of biopsy -- one was "scraping" and the other was like
"picking" with a "pinch." He assured me that there was no "needle
biopsy" ever contemplated.
There
is a very important point to realize here, now. I strongly believe
that any person has an absolute right to make decisions about their
body without any control by another. I might venture my opinion,
even strong opinion, but my relationship with my wife is that I will
support whatever decision she makes in the area of being
responsibility for her own body. Both of the photos along side were
taken after we learned that there was a mass!
Since it was "Jean's swallowing"
not mine, that was the problem, I knew that she would have a
different viewpoint than I did. She was much more willing to have
the endoscopy than I liked, but then, it was her throat and not
mine.
So, she went into the endoscopy
with me doing all the research I could, telling her what I found,
and accepting, without reservation, HER decision to move ahead.
The report of "mass" found was
very upsetting to both of us. I knew, immediately, that a "mass"
was either cancer, or it was not. Jean knew that also.
Jean immediately increased her
dosage of Germanium -- taking about three full teaspoons per day --
about 5,000 mg. That is a very large dosage, but from all the
research I've done on Germanium I thought it would be the very best
thing she could do, outside of surgery and standard chemo or
radiation, to reduce that mass. Germanium, in the loose powder form
we have, is very easy to take. It doesn't have any bad taste.
Jean would hold the Germanium in her mouth -- allow it to dissolve
with a bit of water, be absorbed, and swallow some (mixed with
saliva) so that it would trickle down the throat -- down the
esophagus. When you can apply Germanium very directly to an
unwanted mass it is likely to be quite effective.
She continued with her Aloe Vera
Gel, and took as many of our vitamins as she could swallow.
I immediately did much more
research on cancer in the esophagus, or benign tumor in that area --
that is all published on this page, actually. I knew that a biopsy
result could be "estimated" by the doctor who did the procedure, in
five minutes, "if he wanted to." But, you would hardly ever get a
doctor willing to report on HIS findings, rather the standard of
care is that he prepares the biopsy sample and sends it to the
specialized lab that does these tests. I knew, also, that even
though they COULD do the official test in a couple hours, they
normally took several days.
This expected waiting time is one
of the hardest parts of getting a biopsy. You know that the doctor
has taken the tissue sample. You might even suspect that he or
others know the results. But, you also know that the doctors
usually prefer to give you these results personally, not over a
phone call, and that you then have to fit into his regular
appointment openings.
We understood that Jean would see
her doctor the following Monday -- reasonably fast. But, by
Saturday we realized that the next Monday was President's Day, no
office hours -- his next available time was the following Thursday,
February 19th. That was scheduled. The doctor had also told us
that he wanted Jean to get a CAT Scan, and we knew that the
appointment for that was being "worked on."
The doctor's office called to say
that the CAT Scan was now scheduled for the same Thursday we
expected to see the doctor and get the results of the biopsy. I
might have protested more, but Jean was into getting the CAT scan
done as soon as possible. So, she asked if the doctor's nurse if he
would please give her the results over the phone. His nurse said he
would call, he did, on Thursday morning.
This was now the sixth day after
the procedure -- the sixth day after we had been told there was a
"mass." At the time of the endoscopy the doctor held up his fingers
to estimate what he thought the size of the mass was -- about the
size of a small golf ball! The CAT Scan would give not only exact
dimensions but exact position -- in anticipation of surgery to
remove it.
You can imagine that the expected
phone call was a time of gathering attention and concern.
The doctor called, and gave his
report.
He said, "Whether
or not there is cancer is inconclusive." "There
was," he said, "inflammation at the
bottom of the esophagus, and that inflammation may have been the
cause of what he saw as some irregularity in the cells."
Jean asked him if another biopsy was needed? He said, "no,
the CAT scan will tell us more."
So, we were certainly relived that
there was no diagnosis of cancer, but worried about this
"inconclusive" remark.
As I write these very words, Jean
has had the CAT Scan, and it is now Friday, February 20, 2004. We
have an appointment to see the doctor on the next Monday. He will,
by then, have looked at the CAT scan results.
You notice the "we" throughout.
Over the past few years neither one of us has gone for a medical
consultation without the other. The doctor would not allow me
actually inside a room where a medical procedure was taking place,
but we both always saw the doctor, for either her situation, or
mine, together.
In the meantime the "dilation"
does not seem to have helped much -- Jean is still unable to swallow
much -- vomits up the just-eaten food too often for comfort. She
can do OK with a protein drink, so she is getting basic nutrition.
I have been giving Jean "spiritual
assists" according to the methods of our religion. My religion
suggests that you are
an immortal spiritual being. You are not an animal but you do
inhabit an animal body that limits your awareness, your
intelligence, etc. Does that indicate to
you?
More information.
Just yesterday, February 19th,
Jean had a sudden realization -- from something I had learned and
from her looking and reviewing events. Just several days earlier I
was talking with an IV chelation MD I know and he mentioned that the
first (only?) time he had a patient die, under his care, was when
she started bleeding internally and he couldn't stop it -- it was
from taking and using Naproxen (Aleve).
Jean has been taking Naproxen -- a
prescription drug for pain relief from arthritis. This is another
of those actions I might have felt differently about, but she had
lots of pain that led up to her knee surgery, and so did I leading
up to my hip replacement. We were both taking this Naproxen. She
had a prescription from her knee surgeon -- I was using the
over-the-counter version.
She realized, yesterday, that the
surgeon had warned her about Naproxen, emphatically, NOT to take it
on an empty stomach. Well, she did take it, usually, on an empty
stomach.
She would take it in the morning
"before" breakfast. Breakfast usually followed by less than 30
minutes, but she certainly did violate the doctor's instructions.
Apparently the prescription papers from the drug store also warn the
patient to take Naproxen only with food in the stomach.
We realized, too late, that these
Naproxen tablets could well be getting stuck in her esophagus when
she took them -- not enough stuff to cause vomiting, but leaving
them to dissolve in an area where I had learned the tissues (of the
esophagus) are much more delicate that the tissues in the stomach.
Thus, if she swallowed a Naproxen before breakfast, and if it never
got into the stomach, but stuck at the end of the esophagus, these
tablets could be causing considerable damage to the inner lining of
the esophagus. The tablet could dissolve, cause damage, and then be
vomited up with food from breakfast, or perhaps some swallowed. In
any event she has not seen these tablets in the material that has
been vomited up. She also takes regular vitamins AT the breakfast
table, with food, and these have often been among the material
vomited up. The Naproxen was always taken "upstairs" before
breakfast -- not WITH breakfast.
We now think that is what
happened. This damage could include causing the inflammation which
the endoscopy found -- I think that this Naproxen may even have
caused or contributed to the growth of that "mass." If this is
true, we have an immediate treatment: "Stop
using Naproxen!" Jean has not yet done this. She is now
very careful to take this drug ONLY when there is food in the
stomach. That wouldn't mean "instant healing" but it should mean
"instant elimination of the irritation of the tissues."
This is good news, of course,
because it gives an explanation other than cancer for some of what
the doctor found in the endoscopy. The doctor may have known that
Jean was taking Naproxen, but he certainly did NOT know that she was
taking it on an empty stomach -- or he might have considered that
the inflammation was caused by that, and even suggested some
treatment for that problem rather than an "unexplained
inflammation."
As soon as Jean thought of this,
she discontinued taking Naproxen on an empty stomach. She continues
taking the large dose of Germanium, Aloe Vera Gel several times each
day, takes as many Taheebo Capsules as she thinks she can swallow,
and drinks about two protein drinks (each with a raw egg) per day.
Each of those drinks provides about 40 grams of protein -- 80
total. You can survive quite well with about 60 grams of protein
per day, so she may lose more weight just now, but she should be
well nourished. She takes some vitamins, but feels that they are
likely to get caught in the throat.
I have quit taking Naproxen also.
I had quit using our herbal MSM for some reason and now have gone
back to using that for my hip pain. (I have a second hip
replacement planned for sometime in the next few months.)
I end off my writing here, now, on
Friday, February 20th. I'll write more after we have seen the
doctor, discussed the CAT Scans, and I plan also to write a report
TO the doctor, from Jean, about the Naproxen. (I did not -- we told
him, only.) I want the doctor to have this possible explanation
from us, in writing, so that he can't say we didn't tell him.
It
is hard to show anger or disagreement with a doctor when we may have
to put Jean's life in his hands if he recommends, and she accepts, a
proposed surgery to remove that mass. (I suppose this was the
reason I decided, finally, to NOT give him a written report on the
Naproxen -- it shows a lack of trust to insist that he read
something.) It turns out that he is NOT the doctor who does the
surgery -- someone else. But, the concept is still applicable. You
can feel angry about the "medical system" but when you are about to
be lying on a gurney, mostly unconscious, with the doctor holding a
knife over your belly, you may decide to be very polite while
talking to him before!
Right now Jean feels that the
surgery is probably necessary. I, personally, may have been more
willing to allow the Germanium longer to shrink that mass, but it is
NOT my body -- I support her decision. I give her data, my opinion
only very gently, and accept her decisions.
Oh, Jean called the doctor's
office to confirm the time for Monday's appointment. It is often
true that the nurses at a doctor's office are very casual about
things that are extremely important to a patient. The nurse,
"innocently," asked Jean if, "Has the doctor scheduled your visit to
the surgeon yet?" (In fact, it turned out that the doctor's office
was so sure of what were her next steps that they immediately
requested insurance authorization for the next two specialists --
and had even started FAXing data to them -- without an actual
appointment being made.)
That was a shock -- you don't
expect to get a recommended treatment from the nurse, and we
certainly wanted to hear a full story, not this comment that made it
look like the matter was already decided.
I figured then, that the doctor
really didn't care whether it was cancer or not cancer, he would
recommend surgery anyway, and wanted to get us out of his time-slot
visit as efficiently as he could -- so, on Monday we expect him to
"announce" that Jean must have surgery -- no matter what the biopsy
diagnosis is.
The problem with that is that IF
there is cancer, then we need some further very vital information:
-
How fast has
this mass been growing? Do we have time to use alternatives?
-
Did the "scrape"
biopsy make it now more urgent to do surgery? Or, do we have time
to use alternatives.
-
Did HE have any
alternative treatments that might shrink the mass?
-
If they did the
surgery, without knowing for certain whether or not it was cancer,
would the surgery be any "different" than if they knew for
certain?
-
If they do
surgery presumably they would then do a "big" biopsy on the mass.
How long would it be before we got the results?
-
If it were
cancer, would the surgery (and cutting into the mass) have made
the next treatment, chemo or radiation, all the more urgent?
-
What would be
the expected recovery process?
We just couldn't imagine going
ahead with surgery without having these and other questions asked
and answered. But, we did NOT get all these questions asked!
Since the doctor we were to visit
was NOT the doctor to do a surgery, should we be asking THAT doctor
these questions?
I
felt that we had fallen into the "medical system" even though I
felt, also, that I know a lot about it. It seems that the entire
medical system is designed to move you along on a conveyor belt into
the next medical procedure, and the next insurance coverage. There
doesn't seem to be much room for personal opinion or decision.
These may be very valid conclusions, but the further you get into
the medical system the much more likely you will become accepting of
it -- there seems little alternative.
Many people feel that the "medical
system" treats them as an object to be moved along. With my more
than 25 years of writing about this, I can tell you that it is very
different when it is YOU on that conveyor belt. I felt that I was
protected by my knowledge and already-formed opinions on these
matters. When you ask a doctor for "help" you naturally feel that
you have to accept the conditions in which he gives it. The system
has captured the doctor as much as his patients -- the conveyor
belt!
If this can happen to US, what
will happen to someone who has less knowledge of the medical system?
We have seen the doctor, heard
about the CAT scan, and presented him with the data about the
Naproxen. The following was published less than three hours after
visiting the doctor!
The most significant new
information we received was the certainty of the diagnosis of
cancer!
It was interesting how this came
about.
On the phone this doctor had said
that the biopsy was "inconclusive." You have to learn what their
"code language" is -- what these words mean to THEM.
Within a short time of arriving
the doctor told us about the CAT scan results -- they were actually
looking for signs of cancer in other parts of the body, but did come
up with an exact size and location for the mass in the esophagus.
The mass is about 3.7 x 4.2 cm. That is about 1 1/2 inches by 2
inches -- rather large. The actual CAT Scan report, dry and cold
is:
THERE IS A MASS AT THE GE JUNCTION EXTENDING ALONG THE LESSER
CURVATURE OF THE STOMACH CONSISTENT WITH A NEOPLASM.
....
There is mass involving the medial wall of the proximal stomach
and distal esophagus. At the GE junction the mass measures up to
4.7 cm x 3.8 cm. The medial gastrie wall thickening extends along
the lesser curvature. No obvious ulcer is identified. There
appear to be small lymph nodes around the celiac axis. These are
of unknown significance. A small portaecaval lymph node is also
seen. The abdomen is otherwise unremarkable.
Benign
esophageal neoplasms are very rare. In a large autopsy study,
there were 90 cases out of almost 20,000 autopsies, for a
prevalence of 0.5%. Esophageal tumors may be classified as
intraluminal, intramural or extramural. Benign tumors of the
esophagus are more common in men than in women, and typically
present after age 40. (Source)
He made remarks about the CAT
scan, then went on to start "explaining" the term "inconclusive" by
referencing that the biopsy sample was SO small that it was almost
impossible to be absolutely certain about a cancer diagnosis, but he
did say that there was virtually NO chance that a mass of this size,
in this location, was anything other than cancer.
So, from the first examination,
the endoscopy, and the report on the mass and estimate of the size,
I feel he was quite certain that it was cancer, but for a variety of
"polite and gentle" reasons he did not want to say that on the
phone. Apparently there is some tiny chance (probably less than
0.5%) that a mass this size is not cancer. In any event he said
that the only treatment that anyone would now suggest would be on
the basis that it was cancer -- so he had already gotten the
insurance authorization for the visit to the surgeon and the
oncologist!
Esophageal
cancer is devastating for the patient and family. The prognosis is
poor, and dysphagia, regurgitation, and pain can profoundly
diminish the patient's quality of life. However, survival rates
are improving. About 35 years ago, only 1% of African American
patients and 4% of white patients survived 5 years after
diagnosis, compared with 9% of African Americans and 13% of whites
today (1). Esophageal cancer is almost three times more common
among African American men than white men, and it is three times
more common among men than women. In 1998, the esophagus was one
of the 10 leading sites causing cancer death among men (1). The
American Cancer Society estimates that 11,900 patients died of the
disease and 12,300 new cases occurred in 1998 (1). In addition to
primary disease, the esophagus is occasionally the site of
secondary metastasis or direct extension of tumors of the hilum of
the lung. (source)
The doctor did NOT give us his
opinion as the above quote. Doctors do NOT like to deliver bad news
so if you want the truth, you must ask or do alternative research.
You walk into the doctor's office
with a great deal of hope, based on a small amount of data and a
feeling that, "It can't happen to me!" Then, in one brief comment
the doctor dashes your hope with his reality. I still think the
"reality" is worth confronting.
However, as the
tumor increases in size, patients begin to experience difficulty
swallowing. Difficulty swallowing, the most common symptom,
worsens as the tumor enlarges and begins to obstruct the normal
flow of swallowed food. At first, one notices difficulties with
meats, breads and fresh vegetables but as the cancer progresses,
even liquids can become difficult to handle. Other problems
associated with esophageal cancer are pain behind the breastbone
and frequent, painful bouts of coughing or hiccups. In addition,
weight loss and breath odor can be signs of an advancing
esophageal malignancy.
That is probably what you should
expect if you ever follow this path -- endoscopy -- mass --
swallowing problems.
He told us lots of other stuff,
too.
I'll come to that, but the next
most valuable advice I can give is this. I suspect that doctors
like this are increasingly receiving hostility from patients who
have very negative opinions about the slash/burn/poison standard of
care for cancer. The hostility, if expressed, will turn his
willingness off -- to give data of almost any kind. The motto is
probably, "give them the hard reality, but
don't give them any data which might raise their hopes!"
So, when we left his office I made
a deliberate point of turning to him, smiling, thanking him
(sincerely) and shaking his hand. I suspect that is unusual from a
patient, or even more unusual from the spouse who may be angry at a
doctor for such a diagnosis.
Several minutes later I went back
to ask his nurse another question, he was there, and he seemed more
friendly and more willing to give me data. The data was not more
encouraging, but when you have had this diagnosis you are hungry for
as much data as you can get.
During this visit I mentioned "Barrett's
Esophagus" and that was MY code word to let him know that I had
some somewhat specialized knowledge in this area. You wouldn't want
to appear haughty or superior, but using one of these specialized
words probably helps establish that the doctor can be "straight"
with you.
The normal
esophagus (swallowing tube) is lined by a pinkish-white tissue
called squamous epithelium. Some people also have red stomach
tissue (normal columnar epithelium) present in the bottom
part of the esophagus. Barrett's esophagus is a condition in which
the normal squamous epithelium of the esophagus has been replaced
by an abnormal red columnar epithelium called
specialized intestinal metaplasia.
Specialized intestinal metaplasia is red, like normal stomach
tissue, but does not look like stomach tissue under the
microscope. Therefore, a biopsy (a piece of tissue taken from the
esophagus) is needed to diagnose Barrett's esophagus1-3.
(Source)
When I asked if there were any
evidence of "Barrett's Esophagus" it actually caused him to pause.
He said that was only detected from a special stain done of the
tissue sample, and he didn't know (??) if that had been done. I
actually had him looking through the medical file to see if that
test had been done. It had NOT been done, but he then said that
once there is a mass found it is no longer useful to look for
Barrett's Esophagus -- that Barrett's Esophagus undoubtedly was
there, much earlier, but by this time the "cancer" had become
evident.
Barrett's Esophagus is a condition
of the esophagus tissues that predicts cancer, but is not a sign of
cancer in existence. It is a sign that damage has been done to the
esophagus, but not that cancer is yet present. Since there is
usually no pain or other symptom connected with Barrett's Esophagus,
detection of it is usually accidental (if early) or too late.
I had learned earlier, I thought,
that the dilation done during the endoscopy was not something you
would then repeat much. We learned, this day, that there is an
expectation that the dilation does NOT result in much of an increase
in the opening, or any permanence of that opening, the "first time"
and that it was not unusual to schedule several dilations (with an
endoscopy each time) to get larger and larger, and more a permanent
opening.
So apparently the mass was the
primary reason for the closure of the door at the end of the
esophagus, not some failure of the sphincter muscle. Pushing the
mass outward, to increase the size of the opening, is apparently not
all that useful when the mass is fairly large. In any event, there
is an option which "someone" could suggest, of a series of more
dilations (certainly less invasive and dangerous than either surgery
or radiation!).
He also described a "mesh" that
can be inserted to hold the esophagus open. This is something like
a "stent" in the artery. It actually sounds pretty good to us -- if
the mass can be handled as to cancer with the seed-type radiation,
and use the mesh to keep the esophagus open enough to eat -- then no
surgery would be urgent and slower alternative methods (including
Germanium and Aloe Vera Gel) could be used to restore health to the
tissues.
He described possible treatments
-- saying that it would be up to a surgeon to decide whether or not
surgery should be the first option. I have some data in these pages
that it is not unusual for a surgeon to say that some radiation
treatment should be used "first." We have an appointment with the
surgeon for Wednesday, March 3, 2004 -- the same day this page is
linked to my newsletter. So, some people may be reading this when
we have not yet talked to the surgeon.
We will be making an appointment
with the oncologist in a few more hours -- for some unknown date.
Jean told this doctor of her great
reluctance to undergo either radiation or chemotherapy.
She was willing to have the
surgery -- thinking that this would allow her to swallow, again, and
be less harmful than chemo or radiation.
I don't know if this is true, but
after indicating this reluctance this doctor described one of the
complications that might occur during surgery -- below -- it sure
made the surgery sound very unattractive -- and perhaps he had some
motive to push her in the direction of accepting the radiation
first??
There has been SO much negative
publicity on radiation, and so much actual damage caused by it, that
I am sure the medical profession has been looking for "safer"
radiation procedures. This doctor described what is probably the
usual method.
The put a tube down the throat,
very similar to an endoscopy, and then insert a "radioactive seed"
down the tube and into (?) the mass, apparently for a short time --
then pull it out and up. This small "seed" can be designed for the
right size and dosage they think is "right." The hope is that the
radiation is most strong in the middle of the mass, and that it
doesn't "leak out" much further. I will certainly be doing more
research on that.
They might do a dilation at the
same time. This type of treatment might, then, be repeated every
several weeks, looking for control (death ?) of the cancer mass and
more permanent opening of the esophagus. If this "works" then
perhaps surgery is not necessary.
This might also be the sequence
which the surgeon wants to see -- use some radiation to stop the
cancer metastasis, growth, and when it is then relatively safe,
start cutting the mass out -- not so much, perhaps, to remove a
cancer, but to remove a mass that is pressing on the esophagus.
The "horrible" description of
the surgery? Apparently the surgeon cannot tell until he starts
cutting what is the condition of the tissues. After he removes
the mass, he may have to "repair" the esophagus. If the tissues
of the esophagus are not in good enough shape, he can "harvest"
some tissues from the stomach lining -- and re-construct them into
an esophagus -- I suppose that leaves the stomach smaller.
If there is not enough stomach
lining to do this, or if there is damage to the stomach, then he
"harvests" pieces of the colon and uses that to re-construct the
esophagus. I will be looking for more information on this
procedure, but it sure sounds grim. I have no idea, yet, on what
shape that leaves you for elimination.
As I said, the doctor may be
attempting to scare you by describing such a grim surgical procedure
that you are willing to try radiation. I don't must trust doctors,
but when you are in their hands you have little choice.
I'll write more as I recall it, or
research it, and will be adding quite a bit more to other pages in
this section, and to this page.
If you are inclined to contact
Jean Ross, my wife, please do NOT send sympathy -- that is never a
helpful thought. Advice is OK. In fact I've decided to publish
some of the suggestions we receive --
here. Also, she has a treatment planned, primarily using
germanium and a few other things, but probably going on through the
radiation, first, then surgery if necessary, and does NOT
particularly want or need people to argue with her on any of this.
It is her decision and I grant her the beingness to make that
decision.
Jean's current home treatments
rely considerably on germanium -- she takes about 4 teaspoons per
day -- or about 8 full grams. Dr. Asai suggests 2 grams for cancer
treatment. We will be using this dosage for some time.
Jean cannot swallow capsules, but
the Taheebo may be added at some point.
Here is a promising substance not
yet used, selenium, probably 1 gram, at
least, which is quite a bit more than the RDA:
This remarkable
degree of consistency for the inverse associations strengthens the
likelihood of a causal relationship between low selenium status
and an increased risk of cancer mortality. (Source)
Jean is probably willing to have
the "seed radiation" and then esophagus mesh, if that is available.
Further dilations, as done in the endoscopy, are probably lease
invasive of the options.
Treatment of a
malignant stricture of the esophagus is available but can often be
disappointing. If the malignancy is determined to be small and
localized without any spread beyond the esophagus then a surgical
repair is often opted for and may, on rare occasion cure the
cancer. If the tumor is not curable, then often, palliative
treatments are employed which include chemotherapy, radiation
therapy, esophageal dilation, laser treatments, injections, tumor
probes or placement of an esophageal stent (wire mesh tube) to
keep the esophagus open. In any situation the patient must work
closely with his or her physician to decide what is the best
approach for that individual since it varies from patient to
patient. (Source)
Surgery would be a second choice,
if the above is not likely to help.
Surgery for cancer has vastly
better success rates in hospitals that do many such procedures:
Esophageal
resections were performed in 273 hospitals [in California
-- 1990 - 1994]. An average of two or fewer
resections were performed annually in 88% of hospitals, which
accounted for 50% of all patients treated. The mortality rate in
hospitals with more than 30 esophagectomies for the 5-year period
was 4.8%, compared with 16% for hospitals with fewer than 30
esophagectomies. This could not be accounted for by other health
variables affecting the patients' risk for surgery. There was a
striking correlation between a hospital's frequency of
esophagectomy and the outcome of this operation. The results
support the proposition that high-risk general surgical
procedures, such as esophagectomy for malignancy, should be
restricted to hospitals that can exceed a yearly minimum
experience. (Source)
Alternative and non-standard forms
of treatment that I have been researching include the following:
The DETECTION of
cancer at an early stage is an important element of effective
treatments. One of the reasons that detection techniques have
suffered is that the US Drug Industry has controlled this area.
An even bigger reason is that these newer techniques often cost
much more money than standard techniques and would bust through
the top of insurance coverage. Research and use of these
techniques is often quite "standard" in countries where insurance
does not dominate the standards of medical care.
Even when
detection is no longer an issue, there are other measurements of
an existing cancer which can be done with modern "markers" and
help inform the patient. For instance, when a cancer is fast or
slow growing it tells the patient how much time he or she may have
to look for alternative forms of treatment. This type of
detection is available, but not significantly in the US.
(Click
here for more information.)
I'll be adding more ABOVE, as we
move through a doctor's appointment for March 3rd, one for March
6th, another not yet scheduled, and other standard medical
consultations.
This
web site is a breath
of fresh air in a world of pollution.
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